AACE(the American Association of Clinical Endocrinologists) meets annually; the following abstract was submitted and accepted by AACE this year. Many thanks to everyone!
Steph and Bill
Abstracts– Diabetes Mellitus, Endocr Pract. 2006;12(Suppl 2)
http://www.aace.com/meetings/ams/2006/pdfs/2006AM-Abstracts.pdf
Abstract #103
Use of a Moderated Discussion Forum on the Internet for Patients to Share Experiences With New Diabetes Medications
William W. Quick, MD, FACP, FACE, and Stephanie Schwartz, RN, MPH, CDE
Objective: Several methods of using the Internet for patient education and support have been proposed. The accidental finding that patients can use the comments section of a commercial weblog program (blog) to interact with each other provided the impetus to assess if patient-patient interaction (moderated by an endocrinologist) could improve compliance with 2 new injectable diabetes drugs that have potential gastrointestinal (GI) side effects.
Methods: Beginning July 2, 2005, a discussion forum was established at Diabetes.Blog.com to allow patients to discuss Byetta (exenatide), a new medication for type 2 diabetes. This forum proved so successful (316 comments by August 1) that monthly forums on the same medication were developed; 599 comments were posted in August and 245 between September 1 and 16. Subsequently, discussion forums for Symlin (pramlintide), Lantus (insulin glargine), and other topics were developed.
Discussion: Most of the comments were from users of the medications; some were from people considering using them. Patients shared information on medications that can be used to avoid the GI side effects, products to maintain the refrigerated condition that exenatide requires, traveling with the product, meal planning, and injection technique. They also provided occasional emotional support (e.g., for patients affected by Hurricane Katrina). All comments generated an e-mail to the endocrinologist who was moderating the forum, allowing for rapid deletion of off-topic comments (and the rare malicious posting of inappropriate comments). Occasionally, when a person posting a comment appeared to require professional intervention, the moderator recommended seeking medical advice. Many patients shared their experiences with drug-induced nausea and vomiting and what medications worked best, and they encouraged new users to continue using the drug. Additionally, a survey was undertaken to determine how people had found the blog. Results as of September 16 were as follows (N = 102): 48% from a search at Google or another search engine, 45% from another website or blog, 7% from other sources, less than 1% from a physician who is not a diabetes specialist, less than 1% from a diabetes nurse, less than 1% couldn’t recall, none from a friend or relative, and none from a physician who is a diabetes specialist.
Conclusions: Use of the comments capability of a commercial blogging program allows patient information to be shared with other patients, much as a support group does. It has the added advantages of allowing patients to search earlier comments, not be constricted by time constraints, and interact with a wider group of people than a physical support group would permit.
PS: We ask that you visit the Diabetes Monitor regularly.
Bill the diabetesdoc.