Flying with Diabetes Medications
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Update September 26:
The TSA has updated their webpage on medications for Travelers with Disabilities and Medical Conditions,
You may bring all prescription and over-the-counter medications (liquids, gels, and aerosols) including KY jelly, eye drops, and saline solution for medical purposes.
Additonal items you may bring include:
- Liquids including water, juice, or liquid nutrition or gels for passengers with a disability or medical condition;
- Life-support and life-sustaining liquids such as bone marrow, blood products, and transplant organs;
- Items used to augment the body for medical or cosmetic reasons such as mastectomy products, prosthetic breasts, bras or shells containing gels, saline solution, or other liquids; and,
- Gels or frozen liquids needed to cool disability or medically related items used by persons with disabilities or medical conditions.
You are not limited in the amount or volume of these items you may bring in your carry-on baggage. BUT if the medically necessary items exceed 3 ounces or are not contained in a one-quart, zip-top plastic bag, you MUST declare to one of our Security Officers at the checkpoint for further inspection.
Update August 17, 5:30AM Eastern Time:
Maybe I missed it, or maybe it's new, but the TSA does discuss something vaguely called "associated supplies" and "related supplies" at its undated webpage Travelers with Disabilities and Medical Conditions:
To prevent your medication, associated supplies or fragile medical materials for contamination or damage, we will ask you to display, handle, and repack your own medication and associated supplies during visual inspection. Any medication and/or associated supplies that we can’t clear visually will be X-rayed. If you refuse, you will not be permitted to carry your medications and related supplies into the sterile area.
This may well be the loophole allowing PWD to carry syringes, meters, and cooling containers through security checkpoints to carry onto airplanes.
My advice:
- Print out the entire TSA page (CLICK HERE)
- Circle the paragraph mentioned above.
- Ask your physician or diabetes educator to put a note on office letterhead stationary and sign it, verifying that you have diabetes and require these supplies (insulin, Byetta, Symlin, pills, syringes, meters, strips, cooling containers). Be sure that the "associated supplies" are clearly identified as such!
- Bring the letter as well as your supplies and be prepared for some warm smiles from the overworked TSA employees!
Update August 16, 7AM Eastern Time:
TSA has revised the exception list again. Now medical prostethics are okay, but still no mention of cooling devices for insulin, Byetta, and other medications:
Small amounts of Baby formula and breast milk if a baby or small child is travelingLiquid prescription medicine with a name that matches the passenger’s ticketUp to 8 oz. of liquid or gel low blood sugar treatmentUp to 4 oz. of essential non-prescription liquid medicationsGel-filled bras and similar prostethics worn for medical reasons
Update August 14, 7:30PM Eastern Time:
TSA fixed the exception list.
Exceptions: Baby formula and breast milk if a baby or small child is traveling; prescription medicine with a name that matches the passenger’s ticket; up to 8 oz. of liquid or gel low blood sugar treatment and up to 4 oz. of non-prescription liquid medications.
Update August 14, 7AM Eastern Time:
As of August 13, the TSA has loosened its restrictions somewhat, and now lists restrictions as
Exceptions: Baby formula and breast milk if a baby or small child is traveling; prescription medicine with a name that matches the passenger’s ticket; up to 8 oz of liquid or gel insulin and up to 4 oz. of non-prescription liquid medications.
Although this says "liquid or gel insulin", there is no such thing as "gel insulin" and many news reports identified the gel as the gooey sugar products that some PWD use to treat hypoglycemia.
They also have a nice summary page called Travelers with Disabilities and Medical Conditions.
August 12:
After the recent terrorism threat about exploding liquid bombs on airplanes, there's been a lot of concern about the TSA's new restrictions on carry-ons. As of this morning (August 12), the TSA website states:
Q: Will there be any exceptions to the banned liquids?
A: The following items are permitted to be carried aboard the aircraft:- Passengers traveling with infants may bring baby formula.
- Prescription medicine that matches the passenger’s name.
- Essential non-prescription medicines such as insulin are permitted.
It's such a specialized topic that I'm opening a new Discussion Forum to address this topic. Here are some potential solutions that have been suggested:
- Traveling forum, entry 767: I emphatically do not suggest putting Byetta in checked luggage, not even in the thermos. There is no way to be sure that you'll get your luggage at the same time you arrive. I have had my luggage lost so many times.
- Byetta forum, entry 3752: It appears that you can bring your Byetta to the airport check-in line in any disposable carrier you want, then hand off the carrier to a friend who's not flying, and that you can plan to have someone meet you at the arrival area and have another one ready to go. Or you can do a last-minute switch, moving your carrier into your checked luggage. But also keep close track of how long your Byetta is out of refrigeration, and carry extra prescriptions so that you can buy more whereever you land (remembering of course that Byetta is available in only a few countries, so that's probably not possible if you're flying internationally).
- Byetta forum, entry 3753: Suggestion from a frequent flyer: ice baggie pen on way to airport, pitch bag at door. Drinks are available after check-in while you're waiting for flight, get ice from vender to keep pen cool, pitch before boarding plane. Get ice from attendant during flight.
Since the rules have now been in effect for a few days, perhaps some of our readers have flown, and can report what happened. If you have flown, please indicate if it was a flight totally within the United States or which countries were involved.
Bill the diabetesdoc
wwq@diabetesmonitor.com
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I did not woory much about keeping the Byetta refrigerated. However, I did put the pen, (in its original box and plastic holder) in a ziplock baggie with a very small (3 0z) cool pack. The airport security people did not notice it in my carry on bag. By the time I arrived in the hotel it had been out of the refrigerator for about 7 hours. The cool pack was only slightly cool to the touch. I got ice from the ice machine and put the byetta in the baggie on top of the ice bucket which kept it slightly cool.
So far no apparent problem with the byetta.
(Comment this)
I have written to the TSA, to ask for a clarification as to whether we can carry ice or ice-packs to keep prescription medications cool while traveling. I'll post the answer when I get it.
I have air travel scheduled for later this month. My current plan, pending the answer from the TSA, is to pack my thermos set up in my checked luggage for use at my destination, but to carry the Byetta pen on-board in the travel pack. I'll insulate it well with bubble wrap, and be prepared to jetison the blue ice if told I must.
I considered using the MediCool travel pack, since it is transparent to x-rays, but the cost of the insert is high enough that I'd hate to have to toss it if they won't let it onboard.
It does mean that I'll be relying on Byetta's tolerance for room temperature storage during part of the flight. I hope it really can take more than 144 hours. (Comment this)
"New Airline Travel Security Information from ADA
Due to stepped-up airport security measures on August 10, 2006 concerning liquids and gels, the Transportation Security Administration (TSA) has issued new guidelines related to what passengers can and cannot bring on board the airplane. The TSA announcement specifically states that insulin will still be permitted aboard airplanes along with prescription medicine with a name that matches the passenger's ticket. The general guidelines for traveling with diabetes supplies are still in effect.
More information about traveling with diabetes supplies, which TSA has developed in conjunction with ADA's assistance, can be found at:
CLICK HERE
These tips will help ensure the safety and convenience of travelers with diabetes, while also keeping the traveling community as a whole safe."
Unfortunately this statement does not address the unique concerns related to travelling with Byetta. Also the lady on the phone did not seem to have a clue about Byetta. However, I think the ADA could be a good advocacy group for those of us who need to travel with Byetta. Perhaps if MANY of us wrote to them, it would raise their level of consciousness concerning our plight. I also wrote an emial to TSA with our specific questions about the thermos setup. I will let you know if and when I get a response.
Elaine (Comment this)
Of course this was a domestic flight, I think international has a different set of rules. (Comment this)
I'm thinking that using the Byetta travel pack (modified with blue ice) may be the best way to travel -- it's easily identifible, and has those handy pockets to hold the box and prescription label. (Comment this)
Elaine (Comment this)
Room Temperature - I have no confidence in keeping Byetta at/below room temperature (77 degrees) without cooling, especially this time of year. So, I don't think carrying Byetta without some type of cooling is a very good idea. (Comment this)
It appears the restriction is on liquids and gels, not containers. I'll be flying on the 21st, we'll see what happens.
One thing we really need is to flood TSA and American Daiabetes Association with request to update TS's diabetes travel info to specifically include Byetta. (Comment this)
I think that no TSA person would see the bag as having gel inserts. It just looks like a regular insulated bag.
I haven't been able to find a web site for it, but the company that makes it is:
Pint Size Productions, Inc.
Crystal Lake, Ill
800-544-9183
I have mine chilling in the freezer now -- and will try it without the thermos and the pen in bubble wrap and a ziploc inside. If that doesn't work, I could still use it with the thermos inside and rubbermaid ice pillows. (Comment this)
My daughter's name is Petra!
Unfortunately, the Frio's won't work for Byetta with the current recommendations. The Byetta is supposed to stay at 36-46 degrees and the Frio's only keep their contents at around 68 to 70 degrees. If what was said at the Amylin conference call recently goes into the FDA approved new package insert next year, then the Frio's would do, because the pen you are using will only have to stay at room temp (backup pens should still store between 36 and 46).
But for now, Frio's wouldn't meet guidelines. Sorry. You should tell your DE about this difference, so she doesn't misinform more patients (I'm assuming "DE" stands for "Diabetes Educator.") (Comment this)
Good luck and hope it gets through. Have a safe and great flight! (Comment this)
The screeners have always had to take a second look at mine or in fact have opened it up even when I flew before the new restrictions. This time during my departure the TSA person asked if it was an epi-pen, and when I said yes, she got the x-ray person's attention & told him what it was and he sent it through on a single scan. On my return flight, it went through O.K. but I noticed that the screener stopped and reversed the belt to get a second look at it. Our departure gate was one chosen to have a secondary screening before boarding and had a TSA supervisor, a screening employee, and four soldiers at a table. I showed him the prescription box and showed him how to open the pack and look at the pen. I got through that part fine, but was the person chosen to be patted down by a woman TSA employee. They must choose little old ladies so that they can prove that they are not "profiling".
Beth--I am also little concerned that they won't let the ICE CUBES go through for those using the thermos method. However, once you are through the screening you could replace the cubes from a fast food place in the airport(unless you are getting directly on the plane). (Comment this)
Hi Toni thanks for sharing that important info with us. Did you use the frozen gel pack in the medicooler?? (Comment this)
I think I may try that when I fly next week. It doesn't have the range that the thermos does, but it's not bad.
I haven't had an answer from the TSA yet to my question about cold packs, but I keep getting little "your email has been received" notices. I think my question is being forwarded to many different people.
Has anyone had an actual response from TSA? (Comment this)
I was asking about our Thermos design after all. (Comment this)
Danielle & Beth,
Yes, I use the blue frozen insert. That may be the reason they have trouble seeing what it is under x-ray. The pen was in it for about nine hours on the return trip, and the the blue thing was pretty well thawed out by the time I got home. I just considered the time that the pen was above the allowed temperature as part of its "144 hours".
Toni in CA (Comment this)
So, while the system worked great on both ends of the trip (NJ to FLA) what DIDN'T work was the cooler!!!!!! When I got to my destination the thermometer read 60 degrees......
Coming home, despite the addition of a few extra cubies with the techni ice, still 60 degrees. So far, despite that, I can't tell if my pen is bad or not....I dont have the appetite supression as before, but I am not sure if it is related to the pen or the fact that I am finallly getting used to the Byetta after two months of misery.
I will be calling back the company and sending my cooler back, and going to Walmart for the themos, cause I have another longer trip coming up in October an Iwant to be prepared for that.
Thanks for all the valuable info re travel.
Chris in NJ (Comment this)
I didn't actually measure the temperature, but did find my insulin was always quite cool to the touch, so long as I closed the thing properly.
Frio works on a gel, so I have no idea how TSA will react -- but I've no immediate travel plans, so maybe they'll figure it out without me. (Comment this)
I flew on Delta out of a fairly small airport and got through security in 5 minutes. They x-rayed my carry on bags and were more interested in my computer than anything else.
As I was getting on the plane, the TSA agent called me over and went through both bags very thoroughly. I had the Byetta box in the bag with the prescription label on it. He opened the Byetta pouch and I asked if he wanted to see the letter that my Endo wrote and he said no. I zipped up my bags and that was that.
When my friend crossed the border, he used a crossing in a small town. The US agent on the Canadian side just asked us a few questions and said fine and that was the extent of it.
Here is a copy of the letter that my Endo wrote for my traveling:
To whom it may concern:
___________ is a patient under my care for the treatment of diabetes. It is medically necessary for this patient to carry supplies to monitor the blood sugar and diabetes medications which includes a 10 mcg pen (Exenatide injection) which must be kept cool (45 degrees). When traveling, these pens are in a small pouch with frozen Blue Ice on either side of the Byetta pen.
__________ is also being treated for other medical conditions requiring medications. Please see the attached list of medications that ______ must carry with him.
If you have any questions regarding this patient please feel free to contact me at my office (000)-123-4567.
Sincerely, (Comment this)
Also, ladies, you may carry lip gloss or lip stick as long as it is not in a little pot that requires you to use your finger to apply.
Thanks Charlie for the sample Dr. letter. I will share it with my endo on Monday!
Safe flying!
[I've posted info on Travel Letters both at Diabetes.Blog.com and at the Diabetes Monitor — CLICK HERE.
Bill the diabetes doc.]
(Comment this)
(1) Please spend some time at the Diabetes Monitor website (CLICK HERE) and read more about diabetes.
(2) Be sure to tell your family, friends, support group, diabetes nurse educator, and your doctor about this website!
(3) Also: if you haven't yet answered our polls to tell us more about yourself, we'd encourage you to please do so:
(4) Finally, if you like to answer polls, there are lots more at the Diabetes Monitor, at Polls.
(Comment this)
The version at the Diabetes Monitor (CLICK HERE) includes a Word document you can download to show your physician. (Comment this)
Does anyone know if they are requiring prescription labels for pills or just for liquid meds? (Comment this)
I am leaving on Monday for a trip to U.K. It is very strict flying in and out of Uk.
I plan to pack my Byetta in gel packs and carry the Rx box with label. As far as tablets and pills, I will carry a small amount with me in the original bottles with labels. I am putting all in a small carry on case. Since all cosmetics, lotions, ect are prohibted I will use that space for my meds. Quite inconvinent and nobody seems to have the magic answers. I have not tried the thermos set up.
My experience going out of DFW on Friday, nobody checked anything. That includes my gel packed byetta.
On the way home out Of Indianapolis, none of my bags were checked, but I was frisked...go figure!
Janine (Comment this)
Thanks once again for your advice.
Janine (Comment this)
I flew last week, and had no trouble at security, though I was not using the thermos system. But the Medicooler passed through security with no problem at all. I put it and the box with the prescription label in one of the x-ray trays, and didn't even get a question. I feel much more secure about the thermos for a longer trip.
The restrictions on carrying your prescription apply only to liquids. No problem with pills at all. (Comment this)
http://www.diabetesmonitor.com/m77.htm
(I had bookmarked that page!) (Comment this)
[NOTE: I'm checking with the manufacturer about this.
As of Sept 6, the official labeling document at the Byetta website states: BYETTA should be stored refrigerated at 36ºF to 46ºF (2ºC to 8ºC), protected from light. The pen should be discarded 30 days after first use, even if some drug remains in the pen. Do not freeze. Do not use BYETTA if it has been frozen.
Bill the diabetes doc.]
(Comment this)
Were did you hear of this re new rules on Byetta. We know about the 144 hours.
[NOTE: I'm checking with the manufacturer about this.
As of Sept 6, the official labeling document at the Byetta website states: BYETTA should be stored refrigerated at 36ºF to 46ºF (2ºC to 8ºC), protected from light. The pen should be discarded 30 days after first use, even if some drug remains in the pen. Do not freeze. Do not use BYETTA if it has been frozen.
Bill the diabetes doc.]
(Comment this)
Here in Dallas they searched my thermos set up and told me no ice. They walked back through the security line and I had to pour out the ice and re-enter security line.
So, for me the thermos set up did not work!
I noticed many more people had their personal bags searched today. Maybe because it is a holiday?
Safe flying! (Comment this)